We are a group of graduate students from Parsons the New School for Design, who have created a platform/blog trying to better understand what interventions and strategies we might implement to support issues regarding genetic mutations. Discovering you are carrying a genetic mutation such as BRCA1 or BRCA2 might be a difficult and frightening experience, which might also raise further questions and concerns.
We have created this platform around three viewpoints: the future, the present and the past. Follow the instructions below and help our research by commenting/sharing your thoughts and experience. The exercise takes about 10-20 minutes.
It's interesting because I hadn't really thought of this before...but now that I am diagnosed, have had preventative surgeries and gone through the recovery I really don't have any pressing concerns.
But when I look back on the past few years I would say that the greatest concern was how I juggle wanting to protect my kids and be there for them while I still take the time to have surgeries etc that felt like in the short term I was abandoning them.
In hindsight it wasn't so bad but I guess at the time the decisions seemed so huge, so insurmountable. I got pregnant right after finding out and was anxious about getting cancer since many in my family had already had their first diagnosis by my age. Perhaps at times of stress it's inevitable that you lose a sense of perspective. But the paralysis in the face of so many decisions I will remember more than the recovering from surgery.
It's interesting because I hadn't really thought of this before...but now that I am diagnosed, have had preventative surgeries and gone through the recovery I really don't have any pressing concerns.
ReplyDeleteBut when I look back on the past few years I would say that the greatest concern was how I juggle wanting to protect my kids and be there for them while I still take the time to have surgeries etc that felt like in the short term I was abandoning them.
In hindsight it wasn't so bad but I guess at the time the decisions seemed so huge, so insurmountable. I got pregnant right after finding out and was anxious about getting cancer since many in my family had already had their first diagnosis by my age. Perhaps at times of stress it's inevitable that you lose a sense of perspective. But the paralysis in the face of so many decisions I will remember more than the recovering from surgery.
Oopherectomy is CASTRATION. Women do not realize this. If men were in this situation--many would refuse it.
ReplyDelete