We are a group of graduate students from Parsons the New School for Design, who have created a platform/blog trying to better understand what interventions and strategies we might implement to support issues regarding genetic mutations. Discovering you are carrying a genetic mutation such as BRCA1 or BRCA2 might be a difficult and frightening experience, which might also raise further questions and concerns.
We have created this platform around three viewpoints: the future, the present and the past. Follow the instructions below and help our research by commenting/sharing your thoughts and experience. The exercise takes about 10-20 minutes.
When I think of some kind of image or object or quote that reflects my experience...I am torn between two images. My son's nursery school teacher worked with him every Monday to make a heart that counted down the weeks until I would be able to pick him up and give him a big hug. Each week he would put one on the wall and it was great seeing how excited it made him as he could visually see the weeks going by. They are the only thing I have kept from the whole experience. But I also have in my wallet a well-worn, completely creased family photo. I wasn't the type of person to carry around a family photo but I did take one to hospital with me and now whenever I discover it in my wallet I smile because it reminds me of what we went through to be together as a family.
I recently saw everyone posting their BRCA-related tatoos. And I'd never thought of it before but I get how powerful that would be to have.
When I think of some kind of image or object or quote that reflects my experience...I am torn between two images. My son's nursery school teacher worked with him every Monday to make a heart that counted down the weeks until I would be able to pick him up and give him a big hug. Each week he would put one on the wall and it was great seeing how excited it made him as he could visually see the weeks going by. They are the only thing I have kept from the whole experience. But I also have in my wallet a well-worn, completely creased family photo. I wasn't the type of person to carry around a family photo but I did take one to hospital with me and now whenever I discover it in my wallet I smile because it reminds me of what we went through to be together as a family.
ReplyDeleteI recently saw everyone posting their BRCA-related tatoos. And I'd never thought of it before but I get how powerful that would be to have.